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Ms Amanda Wills
BMedSci, MSciMed (RH&HG), MGC PhD Candidate, UNSW Email: amanda.willis@student.unsw.edu.au |
Overview
Amanda first joined the Psychosocial Research Group in 2011 as a Master of Genetic Counselling student, investigating the information preferences of pregnant couples regarding prenatal testing. After graduating, she took up a role as a cancer genetic counsellor before returning to the PRG as a PhD Candidate in 2014.
Amanda is near completing her doctorate, a collaboration with the International Sarcoma Kindred Study to investigate the impact of returning clinically actionable genomic research findings to research participants. As part of this research she has also developed a decision aid for genomic research participants who are deciding whether or not to access clinically actionable research findings.
Amanda is near completing her doctorate, a collaboration with the International Sarcoma Kindred Study to investigate the impact of returning clinically actionable genomic research findings to research participants. As part of this research she has also developed a decision aid for genomic research participants who are deciding whether or not to access clinically actionable research findings.
Publications
- Willis AM, Smith SK, Meiser B, Ballinger ML, Thomas DM, Martin Tattersall, the International Sarcoma Kindred Study (ISKS), the Kathleen Cuningham National Consortium for Research into Familial Breast Cancer (kConFab) & Young M-A. Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk. Journal of Genetic Counseling; [early view] DOI: 10.1007/s10897-018-0223-y
- Willis AM, Smith SK, Meiser B, Ballinger ML, Thomas DM & Young M-A. Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review. Clinical Genetics 2016; 92(2): 121-133. DOI: 10.1111/cge.12868
- Willis AM, Smith SK, Meiser B, Muller C, Lewis S, Halliday J. How do prospective parents prefer to receive information about prenatal screening and diagnostic testing? Prenatal Diagnosis 2015; 35(1):100-2.
Broad research interests
Psychosocial and behavioural impact of genomic technologies, decision support and health literacy, and the psychosocial aspects of hereditary cancer.